Risks and Benefits

The primary risk of having your information included in the Conquering Diseases Clinical Research Volunteer registry is a potential breach of your privacy of your stored information. UMass Memorial and the Medical School will, however, protect the privacy of your health information. Your information will be maintained in a secured database by UMass Memorial. This means that only authorized personnel will have access to the information.

Your name and contact information will be released only to researchers who have a research study approved by an Institutional Review Board (IRB) and only if the Institutional Review Board has approved a request from the researchers to receive the information. Risks of future research in which you may be invited to participate will be discussed with you at that time.

Time Involvement: Your enrollment in the Conquering Diseases Clinical Research Volunteer Registry will take approximately 10 minutes.

Payments: You will not be reimbursed for enrolling in the Conquering Diseases Clinical Trials Volunteer Registry.